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Illness Narrative

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lightbulbAbout this topic
Illness narrative refers to the personal accounts and stories individuals share about their experiences with illness, encompassing the emotional, social, and psychological dimensions of their health journey. This field of study examines how these narratives shape identity, influence perceptions of illness, and contribute to understanding the patient experience in healthcare contexts.
lightbulbAbout this topic
Illness narrative refers to the personal accounts and stories individuals share about their experiences with illness, encompassing the emotional, social, and psychological dimensions of their health journey. This field of study examines how these narratives shape identity, influence perceptions of illness, and contribute to understanding the patient experience in healthcare contexts.

Key research themes

1. How do clinical encounters and narrative discordance impact the co-construction of illness experiences between patients and clinicians?

This research area focuses on the interactional dynamics in clinical settings where patients and clinicians enact illness narratives that often fail to align, resulting in fragmented, disrupted, or contested storytelling. Understanding this narrative discordance is vital for elucidating barriers to shared understanding, coherent illness narratives, and effective collaborative care in healthcare.

Key finding: This work identifies that clinical encounters frequently involve an inter-cutting heteroglossia of patient and clinician narratives, leading to mutual subversion of illness accounts and failure to create shared integrative... Read more
Key finding: This paper discusses resistance to narrative medicine within healthcare, revealing that despite recognition of storytelling’s importance, entrenched biomedical paradigms and limited consultation timeframes hamper narrative... Read more
Key finding: Reflective writing and narrative medicine practice enhance physician self-awareness and empathy, leading to more compassionate patient care. The study emphasizes the therapeutic benefit of narrative techniques in bridging... Read more
Key finding: Interview data from physicians across internal medicine, pediatrics, and surgery demonstrates variability in narrative medicine adoption, with common themes including roles, practices, and outcomes of narrative skills.... Read more

2. What methodologies best capture and interpret the lived experience of illness and its integration into personal identity?

This domain explores qualitative research methodologies, particularly narrative inquiry, autoethnography, and embodied narrative methods, that enable rich, contextualized understanding of individuals’ subjective illness experiences. It emphasizes temporality, sociality, and spatiality in narratives and investigates how meaning is co-constructed and transformed through storytelling, contributing to person-centered care.

Key finding: The authors advocate narrative inquiry, with its focus on temporality, sociality, and spatiality, as an effective qualitative methodology for capturing the relational and contextualized nature of health and illness... Read more
Key finding: Using phenomenological and autoethnographic methods, this study shows that embodied narratives, such as performance art, serve as powerful mediums for sharing trauma and illness experiences. These narratives help reconstruct... Read more
Key finding: Through an autoethnographic feminist perspective, this interview-based study illustrates the complexities and political dimensions of writing intimate illness narratives, especially in sociocultural contexts with linguistic... Read more
Key finding: This mixed-methods feasibility study demonstrates that facilitated storytelling and creative writing sessions provide adolescents with chronic rheumatologic illnesses therapeutic benefit by enabling expression of illness... Read more

3. How does the process of narrative meaning-making influence quality of life and psychosocial adaptation in serious illness?

This theme addresses the cognitive and existential processes whereby individuals integrate illness into their life narratives, reconstruct meaning, and manage disruptions to identity and worldview. The focus is on how narrative coherence and integration affect well-being, coping strategies, and psychosocial adjustment, aiding personalized therapeutic interventions.

Key finding: This paper theorizes a model linking life events, worldview, existential contingency, narrative meaning-making, and quality of life, positing that successful narrative integration of illness experience mitigates distress and... Read more
Key finding: The authors conceptualize illness narratives as socially and culturally situated constructions that help individuals impose temporal and meaningful coherence on disruptive illness experiences, facilitating identity... Read more
Key finding: This literary analysis reveals how the protagonist’s deviation from conventional cancer narrative tropes—especially rejection of heroic combat metaphors—and incorporation of fragmented, experimental storytelling reflect... Read more

All papers in Illness Narrative

This chapter is an act of remembrance, to recall creatively the wounds that my body went through and at the same time to celebrate the transformation that they allowed to happen. It is a speculative fabulation on wounds, coming from an... more
El crítico peruano Ricardo González Vigil, en la presentación de la novela de Róger Rumrrill (Iquitos, 1938) Las estirpes amazónicas (2020), señala cómo esta abre un nuevo camino en el análisis de la literatura amazónica peruana, a través... more
View metadata, citation and similar papers at core.ac.uk provided by University of Saskatchewan's Research Archive i PERMISSION TO USE In presenting this dissertation in partial fulfillment of the requirements for a Postgraduate degree... more
View metadata, citation and similar papers at core.ac.uk provided by University of Saskatchewan's Research Archive i PERMISSION TO USE In presenting this dissertation in partial fulfillment of the requirements for a Postgraduate degree... more
SICK Magazine is a thoughtful magazine by sick and disabled people. Issue 6 - July 2024 Designed by Kaiya Waerea Cover art by Hanna Norberg-Williams Illustrations by Hanecdote Essays, features, poetry, art & more from Vida Adamczewski,... more
In issue 102, guest editor Therese Estacion asks: “What do we make of a disabled body or, to use disability justice group Sins Invalid’s term, bodymind that desires? A body that knows all too well how it feels to be told that it has no... more
In Between Spaces, Stillhouse Press’s first ever anthology, centers the experiences of thirty-three disabled poets, short-story writers, and essayists as they navigate the physical and emotional complexities of disability, chronic... more
Our Stories to Tell is intended to be part of a growing movement to reduce stigma, raise awareness and understanding, and amplify voices of those who are often silenced by societal judgements and indifferences. It covers a broad range of... more
This paper, building on Susan Sontag's seminal works Illness as Metaphor (1978) and AIDS and Its Metaphors (1989), aims to offer a framework for reflecting on the meaning of illness and its metaphorical representations, particularly in... more
This paper revisits Susan Sontag’s work, “Illness as Metaphor; and, AIDS and Its Metaphors” (1990), to examine how disease metaphors intersect with gendered narratives in the context of the increasing global climate crisis and health... more
In the context of the ‘documentary turn’ that has influenced various artistic disciplines since the late twentieth century, this book presents novel insights into the application of the documentary approach in contemporary narrative,... more
This literature review explores how researchers have conceptualized resilience, drawing from five key academic sources and a moving TEDx talk by Dr. Lucy Hone. It examines why some individuals emerge stronger while others suffer lasting... more
This paper examines the power of a mediatized President to use reflexive propaganda—the rules and assumptions of digital media—to define a public health crisis. During the 2020 coronavirus pandemic, President Trump engaged in... more
Rereading a canonic book in medical humanities can generate an immediate sense of how much has changed in the larger conversations still circulating around the issues that book broached in significant ways. The appearance in 2013 of the... more
Clarke, A. 2016. Anticipated stigma and blameless guilt: Mothers' evaluation of life with the sex-linked disorder, hypohidrotic ectodermal dysplasia (XHED).
Dr Ananda's Keynote at IAYT’s SYTAR 2025, the annual Symposium on Yoga Therapy and Research.
Construir sobre el Derrumbe: Se señala la inaplicabilidad de la intepretación, como recurso técnico, frente a un paciente cuyas mermas neurólogicas eran una suerte de "registro gráfico" de ciertos acontecimientos traumáticos nucleares que... more
Dette verket omfattes av bestemmelsene i Lov om opphavsretten til åndsverk m.v. av 1961. Verket utgis Open Access under betingelsene i Creative Commons-lisensen CC BY-NC 4.0. Denne lisensen lar andre dele og bearbeide verket for... more
Drawing on econarratological insights, this article examines the ecological potential of multiperspective narratives by proposing the concept of “framed slowness,” that is, a slow way of experiencing narrative elicited by the use of... more
for awarding me two years as a pre-doctoral scholar. My position allowed me ample time to write and provided wonderful, supportive colleagues. I especially want to thank Rebecca Bordt, Angela Castaneda, and Nancy Davis for enriching my... more
Regardless of the ongoing interest that attempts to bridge the gap between literature and medicine, this field of research is still unfathomable. There are insufficient amounts of critical assessments of illness narratives related to the... more
Comics is a sequential art that appeals to a diversified audience, a medium of reflection on culture, society, and history. Graphic literature is a discourse of dynamic interaction of graphics in literature, including literary comics,... more
Viewing cancer pain as a battle can have implications for clinical decision-making and pain management strategies
Oslo: Vidarforlaget 2016. Da den franske general Pétain i 1940 ble utnevnt til statsminister, var han 84 år gammel. Så sent i livet åpnet han nesten aldri munnen. Men da han en dag ble spurt hvordan han ville forklare det franske... more
Oslo: Vidarforlaget 2016. Da den franske general Pétain i 1940 ble utnevnt til statsminister, var han 84 år gammel. Så sent i livet åpnet han nesten aldri munnen. Men da han en dag ble spurt hvordan han ville forklare det franske... more
Et spørreskjema ble sendt til 2 000 tilfeldig utvalgte norske kvinner i alderen 22 -55 år. Spørsmålene var om kosmetisk kirurgi, demografiske data, om selvfølelse og omgivelsenes grad av aksepterende holdning til kosmetisk kirurgi. 907... more
Aufbruch zu neuen Ufern, Entdeckungen neuer Welten, Fortschritt ohne Grenzenmit Stichwörtern wie diesen schmückt sich die neuzeitliche Wissenschaft gerne. Doch in Wirklichkeit stösst der Erkenntnisdrang zunehmend an Grenzen, die manchmal... more
This paper focuses on the narrativity in wordless comics, that is, in comics that do not use words or use them only scarcely. The verbalvisual duality of comics is always semiotically challenging. The absence of words in wordless comics... more
Disability is a fundamental facet of human diversity, yet it lags behind race, gender, ethnicity, sexual orientation, and class in recognition inside and outside the academy. Disability has its own history (or histories) and culture(s)... more
In ihrer 2017 erschienenen Monographie, die kurzlich als Taschenbuch bei Edinburgh UP mit dem Titel Medicine and Empathy in Contemporary British Fiction: An Intervention in the Medical Humanities veroffentlicht wurde, fuhrt Anne Whitehead... more
Tous droits réservés © Spirale magazine culturel inc., 2011 Ce document est protégé par la loi sur le droit d'auteur. L'utilisation des services d'Érudit (y compris la reproduction) est assujettie à sa politique d'utilisation que vous... more
Tous droits réservés © Spirale magazine culturel inc., 2011 Ce document est protégé par la loi sur le droit d'auteur. L'utilisation des services d'Érudit (y compris la reproduction) est assujettie à sa politique d'utilisation que vous... more
Humans tend to seek their identity as entities existing over a period of time by making narratives. The paper argues that seeking diachronic self-identity through narratives or stories results in the self-experience being one of... more
È un titolo singolare, un argomento inaudito, ma a cui l'autore tiene da tempo, specialmente durante quei due anni e mezzo del periodo Covid, in cui molti hanno riflettuto sul rapporto tra letteratura e malattia. Per chi scrive, il tema... more
Cet article assure que les recberches qualitatives ne rendent pasjusticeh l'expe'riencedesfemmes commeaidantes, patientes, coordonnatricesdessoins etsi on adoptait uneanalysedessoins bake sur la di~ersite'des~enres, on serait en mesure... more
On risque d’être surpris en découvrant qu’un des livres les plus traduits du monde est réputé intraduisible; qu’un des livres pour enfants les plus emblématiques n’est pas tout à fait un livre jeunesse; que l’auteur d’une aventure... more
Kérem ismertesse, hogy a sokéves orvosi tevékenység után milyen jellemzői vannak az orvos tudatának, és mik a főbb eltérései más ember tudatától, továbbá sorolja fel a szerzőket, akik ezt a kérdést elemezték, és ismertesse részletesen... more
Background:Sexual and reproductive healthcare services and needs (SRHSN) are essential for improving overall health and well-being. Queer people face obstacles not just in obtaining and receiving SRHSN, but also in provisioning of these... more
Toen in 2006 het Handbook of narrative inquiry werd aangekondigd, keek ik met ongeduld uit naar de publicatie ervan. De redactie werd bovendien verzorgd door de gerenommeerde dr. Jean Clandinin, een pionier in het narratief onderzoek.... more
En omtale av Geir Gundersens bok om sin lyse sorg over Liv Riiser Gundersen.
by Soha Bayoumi and 
1 more
Inspired by the rising inclusion of graphic works in classrooms, the conversation highlights the potential of comics, especially recent graphic medicine titles, as records of events such as the COVID-19 pandemic, capturing healthcare... more
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