Papers by Paula K Baldwin
Becoming a Caregiver: Experiences of Young Adults Moving into Family Caregiving Roles
Journal of Adult Development, 2022
While the vast majority of family caregivers struggle to find balance between different roles in ... more While the vast majority of family caregivers struggle to find balance between different roles in their lives, young adult caregivers are faced with the atypical challenge of caring for family member while simultaneously accomplishing developmental tasks typical of this stage in life (e.g., establishing career, developing romantic relationships). This exploratory, qualitative study examined strategies used by young adults to adopt family caregiving roles. These strategies can be described as embracement, compromise, and integration. While each approach allowed for the young adult to facilitate their caregiving role, additional research is needed to understand how the strategy affects the emerging adult’s development.
Cloud Services
Encyclopedia of Big Data, 2022
Incorporating disability studies into the communication classroom through a high impact engagement nonverbal communication assignment
Pedagogy, Disability and Communication, 2017
Other graduate students have commiserated with me through this process and we have all rallied to... more Other graduate students have commiserated with me through this process and we have all rallied to and repeated our mantra of "it all gets done." Through this process I am fortunate to have become friends with Janey Trowbridge, who continues to inspire me. I also owe a debt of gratitude to my dear friend, Rippy Gill, for her unwavering faith in me. No student achieves completion and success in an endeavor such as this by themselves. I have been fortunate to have been taught, mentored, and surrounded by extraordinary scholars. Some of you taught me humility and some of you taught me what it meant to soar. Some of you pushed me to lead and some of you reminded me that the best leaders must also know how to follow. For each lesson that I have been given, I remain humbly grateful. v TABLE OF CONTENTS
Incorporating disability studies into the communication classroom through a high impact engagement nonverbal communication assignment
Pedagogy, Disability and Communication: Applying Disability Studies in the Classroom, 2018
Qualitative Research in Medicine & Healthcare
Family caregivers in young adulthood from different racial/ethnic groups represent an understudie... more Family caregivers in young adulthood from different racial/ethnic groups represent an understudied population. Of this group, Asian Indians are a diverse and fast-growing immigrant population in the US and present unique challenges for health care providers. To illustrate factors influencing a young family caregiver from an under-represented racial/ethnic population, we report on the case of a 33 year-old American from an Asian Indian background who was a caregiver for his father with Normal Pressure Hydrocephalus (NPH). With this case report, we illustrate that medical providers should attend to cultural norms of the family system, including family communication patterns, filial obligation, and decision-making.
“I Didn’t Expect to Learn as Much as I Did”: Rewards of Caregiving in Young Adulthood
Journal of Adult Development
Behavioral Sciences
The Death Café is part of the Death Positive movement, and as such, is uniquely positioned to bri... more The Death Café is part of the Death Positive movement, and as such, is uniquely positioned to bring the dialogue about death and dying to the public. Participants in a Death Café typically have two different perspectives. Some participants have not experienced death in their family and friends' circle and wish to converse with others about their beliefs on death and dying. Others are those who have experienced death somewhere in their circle of friends and families. One of goals of the Death Café facilitators is to help attendees reconcile their family narratives regarding death using the broader lens of the Death Café. Using the insights provided by interviews from 15 Death Café facilitators, this manuscript discusses the role of the Death Café facilitators as the death doulas of family communication.
Huntsman Cancer Institute
The SAGE Encyclopedia of Cancer and Society, 2015
Family Meeting
Encyclopedia of Health Communication, 2014
Exploring Children/Adolescents’ Final Conversations with Dying Family Members
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Exploring Children/Adolescents’ Final Conversations with Dying Family Members
Journal of Family Communication, 2014
Rethinking family caregiving: tailoring cognitive-behavioral therapies to the hospice experience
Health & social work, 2014
Hospice family caregivers experience significantly higher rates of psychological distress than de... more Hospice family caregivers experience significantly higher rates of psychological distress than demographically similar noncaregivers. Interventions based on cognitive-behavioral therapy have been shown to reduce psychological distress in the general population by providing tools to modify thinking patterns that directly affect emotions and behavior. Such interventions might reasonably be incorporated into hospice social work; however, numerous contextual factors must be taken into account to ensure that any interventions are appropriate to the unique needs of clients. The purpose of the study discussed in this article was to contex- tualize one aspect of the cognitive-behavioral model based on firsthand accounts of hospice family caregivers. Following a modified grounded theory approach, researchers engaged in a secondary analysis of data from a larger study provided in a subsample of 90 audio-recorded conversations between hospice family caregivers and interventionists. Findings in...
Journal of Pain and Symptom Management, 2013
Context. Those caring for their loved ones in hospice experience tremendous stress, being faced w... more Context. Those caring for their loved ones in hospice experience tremendous stress, being faced with numerous decisions as they work to manage the pain experienced by their loved one. Although hospice care teams create pain management strategies, it is the role of the caregiver to implement these plans.
Journal of Hospice & Palliative Nursing, 2011
Medicare requires all hospice agencies to conduct regular interdisciplinary team meetings to faci... more Medicare requires all hospice agencies to conduct regular interdisciplinary team meetings to facilitate collaboration within the team and to coordinate holistic plans of patient care. This study takes a preliminary look at hospice agencies' preparation of interdisciplinary team members for collaboration within team meetings and aims to explain hospices' strategies for training and assessing the collaborative strength of interdisciplinary team meetings. Using a purposive sampling strategy of the 721 hospices listed as members of the National Hospice and Palliative Care Organization, a semistructured phone survey was administered to 145 hospice agencies over the phone. Survey items measured four aspects of team processes: nature and structure of the current team, organizational training procedures currently in place, perceived needs assessment for team training, and current evaluation practices. Current team training practices show that 61% receive training, with 33% reporting that training includes team building. More than half of the participants reported that their team needs ongoing training in case presentation, conflict resolution/ communication/relationships, patient care/pain management, and teamwork. Although training is occurring, there are no structures in place to ensure that interdisciplinary team members receive adequate team communication training. Future work is needed to determine the best timing for training as well as training curriculum.
Pain Management and the African American Hospice Caregiver: A Case Report
American Journal of Hospice and Palliative Medicine, 2013
Journal of Computer-mediated Communication, 2010
This paper presents the theoretical framework and rationale for the ACTive intervention which pro... more This paper presents the theoretical framework and rationale for the ACTive intervention which proposes the use of video technology to facilitate patient and family participation in hospice interdisciplinary team meetings where plans of care are determined. It is surmised that patient and family involvement will improve communication and compliance in hospice care. An analysis of data from a pilot project of the ACTive intervention was conducted to explore active participation among family caregivers and the hospice team. Through the use of videophone technology caregivers participated in video-recorded team meetings. The actual communication behaviors of caregivers and team members were analyzed for active participation. Findings revealed that team–prompted caregiver participation was most common, however, team use of supportive talk in this context was considerably less frequent. The study also found that the team's use of active participation behaviors elicits caregiver active participation behaviors. The results of this study suggest the intervention was an effective way to involve family caregivers as active participants in the designing of care for their loved one. Findings also suggest that hospice staff would benefit from education and training on best practices for communicating with caregivers in the team meeting setting.
Creating COMFORT: A Communication-based model for Breaking Bad News
Communication Education, 2010
This study builds upon existing protocols for breaking bad news (BBN), and offers an interaction-... more This study builds upon existing protocols for breaking bad news (BBN), and offers an interaction-based approach to communicating comfort to patients and their families. The goal was to analyze medical students' (N = 21) videotaped standardized patient BBN ...
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Papers by Paula K Baldwin