Rebecca Garden
Rebecca Garden has a PhD in English literature from Columbia University. She has published on Deaf culture, narrative, and medicine in Disability Studies Quarterly and the Journal of Clinical Ethics; on empathy and medicine in New Literary History and the Journal for General Internal Medicine; and on narrative and disability in Perspectives in Biology and Medicine, the Journal of Medical Humanities, and Medical Humanities. She teaches ethics, the health humanities, and disability to nursing, medical students and residents at Upstate Medical University. Through the Consortium for Culture and Medicine, which she directs, Garden teaches courses on disability, medicine, and narrative that include humanities, social science, nursing, and pre-med undergraduates from neighboring institutions as well as clinical students from Upstate. She also co-teaches a graduate course (for law, medical, and sociology students) that is part of a project to investigate d/Deaf patients’ access to health care (the Campaign for Deaf Access: Expanding Communication in Health Care social research project: http://disabilitystudies.syr.edu/what/deafaccess.aspx.) Garden serves on the editorial boards of the Journal of Medical Humanities, Literature and Medicine, and Ars Medica: A Journal of Medicine, the Arts, and Humanities.
Phone: 315-464-9795
Address: Upstate Medical University
Public Health & Preventive Medicine
3171 Weiskotten Hall
Syracuse, NY 13210
Phone: 315-464-9795
Address: Upstate Medical University
Public Health & Preventive Medicine
3171 Weiskotten Hall
Syracuse, NY 13210
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Papers by Rebecca Garden
of advocacy, a means of addressing a problem of
underrepresentation. They focus on suffering, rather than
pathology, and on sociocultural understandings of illness
and disability, rather than a narrow biomedical
perspective. The health humanities thus analyse and
attempt to recalibrate the power imbalance in
healthcare. This article reviews health humanities
scholarship that addresses underrepresentation through
the analysis of illness and disability narratives. It
examines the ethics of representation by exploring how
literary representation functions, its aesthetic as well as
political dimensions, and how it operates as a relay
mechanism for power. The mechanism of representation
is further explored through a reading of Eli Clare’s
narrative Exile and Pride. Donna Haraway’s notion of
articulations is proposed as a tool for a more ethical
approach to representation. The article suggests that
transparency about the power health humanities scholars
stand to gain through representation may contribute to a
more ethical health humanities practice.
clinicians may better serve children and parents.