Patients as Partners in Research: It's the Right Thing to Do
2019, Journal of Orthopaedic & Sports Physical Therapy
https://doi.org/10.2519/JOSPT.2019.0106Abstract
T he health research landscape is changing, and it is time for the Journal of Orthopaedic & Sports Physical Therapy (JOSPT) community to "up our game" by fostering authentic opportunities for patient engagement in musculoskeletal research and practice.
References (10)
- Crocker JC, Ricci-Cabello I, Parker A, et al. Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis. BMJ. 2018;363:k4738. https://doi.org/10.1136/bmj. k4738
- Duffett L. Patient engagement: what partnering with patient in research is all about. Thromb Res. 2017;150:113-120. https://doi.org/10.1016/j. thromres.2016.10.029
- Fergusson D, Monfaredi Z, Pussegoda K, et al. The prevalence of patient engagement in published trials: a systematic review. Res Involv Journal of Orthopaedic & Sports Physical Therapy® Downloaded from www.jospt.org at on March 26, 2022. For personal use only. No other uses without permission. Copyright © 2019 Journal of Orthopaedic & Sports Physical Therapy®. All rights reserved. [ editorial ]
- Engagem. 2018;4:17. https://doi.org/10.1186/ s40900-018-0099-x
- Forsythe LP, Carman KL, Szydlowski V, et al. Patient engagement in research: early findings from the Patient-Centered Outcomes Research Institute. Health Aff (Millwood). 2019;38:359-367. https://doi.org/10.1377/hlthaff.2018.05067
- Hibbard JH, Greene J. What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs. Health Aff (Millwood). 2013;32:207-214. https:// doi.org/10.1377/hlthaff.2012.1061
- Kaur N, Pluye P. Delineating and operationalizing the definition of patient-oriented research: a modified e-Delphi study. J Patient Cent Res Rev. 2019;6:7-16. https://doi.org/10.17294/ 2330-0698.1655
- Kirwan JR, Hewlett SE, Heiberg T, et al. Incor- porating the patient perspective into outcome assessment in rheumatoid arthritis--progress at OMERACT 7. J Rheumatol. 2005;32:2250-2256.
- Manafo E, Petermann L, Mason-Lai P, Vandall- Walker V. Patient engagement in Canada: a scoping review of the 'how' and 'what' of patient engagement in health research. Health Res Policy Syst. 2018;16:5. https://doi.org/10.1186/ s12961-018-0282-4
- Staley K. 'Is it worth doing?' Measuring the impact of patient and public involvement in research. Res Involv Engagem. 2015;1:6. https://doi.org/10.1186/s40900-015-0008-5